Below is a selection of essential references for understanding patient engagement. If you want a more comprehensive bibliography, contact me using the feature on this website.

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Introduction to Patient Engagement

  • Majid U. (2019). Healthcare in an Era of Patient Engagement: Language for Ongoing Dialogue. Health Science Inquiry. 1(10): 54-56. Retrieved from:
  • Wale, J., Scott, A. M., Hofmann, B., Garner, S., Low, E., & Sansom, L. (2017). Why patients should be involved in health technology assessment.International journal of technology assessment in health care33(1), 1-4.
  • Castro, E. M., Van Regenmortel, T., Vanhaecht, K., Sermeus, W., & Van Hecke, A. (2016). Patient empowerment, patient participation and patient-centeredness in hospital care: a concept analysis based on a literature review. Patient education and counseling99(12), 1923-1939.
  • Fredriksson, M., & Tritter, J. Q. (2017). Disentangling patient and public involvement in healthcare decisions: why the difference matters. Sociology of health & illness39(1), 95-111.

Meaningful Patient Engagement

  • Majid U. (2020). The Dimensions of Tokenism in Patient and Family Engagement: A Concept Analysis of the Literature. Journal of Patient Experience.
  • Majid U. (2020). Using Shared Mental Models to Conceptualize Patients as Professionals, Decision-Makers, Collaborators, and Members of Interprofessional Healthcare Teams. Patient Experience Journal. 7(1): 20-30.
  • Majid U, Gagliardi A. (2019). Clarifying the Degrees, Modes, and Muddles of “Meaningful” Patient Engagement in Health Services Planning and Designing. Patient Education and Counseling. 102: 1581-1589
  • Ocloo, J., & Matthews, R. (2016). From tokenism to empowerment: progressing patient and public involvement in healthcare improvement. BMJ Qual Saf25(8), 626-632.
  • El Enany, N., Currie, G., & Lockett, A. (2013). A paradox in healthcare service development: professionalization of service users.Social science & medicine80, 24-30.
  • Gordon, S. (2005). The role of the consumer in the leadership and management of mental health services.Australasian Psychiatry13(4), 362-365.

Patient Engagement in Organizational Activities

  • Baker, G. R., Judd, M., Fancott, C., & Maika, C. (2016). Creating “engagementcapable environments” in healthcare. Patient engagement: catalyzing improvement and innovation in healthcare12.
  • Bate, P., & Robert, G. (2006). Experience-based design: from redesigning the system around the patient to co-designing services with the patient. BMJ Quality & Safety15(5), 307-310.
  • Van de Bovenkamp, H. M., Trappenburg, M. J., & Grit, K. J. (2010). Patient participation in collective healthcare decision making: the Dutch model. Health Expectations13(1), 73-85.
  • Liang, L., Cako, A., Urquhart, R., Straus, S. E., Wodchis, W. P., Baker, G. R., & Gagliardi, A. R. (2018). Patient engagement in hospital health service planning and improvement: a scoping review.BMJ open8(1), e018263.