Projects

Around the world, health services organizations are increasingly engaging patients and family in research, clinical care, and quality improvement. However, in spite of this pervasiveness, there remains uncertainty on the most important mechanisms and processes for engaging patients. This is particular true for patient engagement in health service planning and improvement activities. This research program aims to investigate patient engagement in planning and improvement activities.

Planned Projects

1. Scoping Review: What terms to studies use to depict meaningful PE in planning and improvement activities?
2. Concept Analysis of Meaningful PE: How do studies on PE in planning and designing activities conceptualize different terms that depict PE? 
3. Concept Analysis of Tokenism in PE: What are the different dimensions of tokenism in PE?
4. Theoretical Review of Shared Mental Models and PE: How can the literature on shared mental models be used to expand the roles of patients in healthcare activities?
5. Policy Analysis of Patient-Centric Healthcare Culture: What ideas support and oppose a patient-centric culture?
6. Comparative Health System Analysis on the Development of Patient and Family Advisory Committees: What historical characteristics and legislative imperatives have contributed to the proliferation of Patient and Family Advisory Committees between Ontario, Canada and England, United Kingdom?

Publications

• Majid U. (2021). The Tensions Between Healthcare Providers and Patient and Family Advisory Committees (PFACs): A Comparative Health System Analysis Between England and Ontario. Patient Experience Journal.https://doi.org/10.35680/2372-0247.1562
• Majid U*, Wasim A. (2020). Patient-Centric Culture and Implications for Patient Engagement during the COVID-19 Pandemic. Patient Experience Journal. 7(3): 5-16. https://doi.org/35680/2372-0247.1398
• Majid U. (2020). The Dimensions of Tokenism in Patient and Family Engagement: A Concept Analysis of the Literature. Journal of Patient Experience. https://doi.org/10.1177/2374373520925268
• Majid U. (2020). Using Shared Mental Models to Conceptualize Patients as Professionals, Decision-Makers, Collaborators, and Members of Interprofessional Healthcare Teams. Patient Experience Journal. 7(1): 20-30. https://doi.org/10.35680/2372-0247.1378
• Majid U*, Gagliardi A. (2019). Conceptual Frameworks and Degrees of Patient Engagement in the Planning and Designing of Health Services: A Scoping Review of Qualitative Studies. Patient Experience Journal. 6(3): 82-90. https://doi.org/10.35680/2372-0247.1356
• Majid U. (2019). Healthcare in an Era of Patient Engagement: Language for Ongoing Dialogue. Health Science Inquiry. 1(10): 54-56. Retrieved from: https://www.healthscienceinquiry.com/2019
• Majid U*, Gagliardi A. (2019). Clarifying the Degrees, Modes, and Muddles of “Meaningful” Patient Engagement in Health Services Planning and Designing. Patient Education and Counseling. 102: 1581-1589 https://doi.org/10.1016/j.pec.2019.04.006
• Majid U. (2019). The Unintended Effects of Reorganizing Regional Health Authorities on Patient Engagement. Longwoods, retrieved from: https://www.longwoods.com/content/25778
• Majid U. (2018). A Reminder to Decision-Makers and Healthcare Professionals of the “Why” of Patient Engagement: Ethical Imperatives and Economic and Social Benefits. Longwoods, retrieved from: https://www.longwoods.com/content/25661//a-reminder-to-decision-makers-and-healthcare-professionals-of-the-why-of-patient-engagement-e
• Majid U. (2018). What have we done? The piths and perils of tokenistic engagement in healthcare. Longwoods. Retrieved from: https://www.longwoods.com/content/25582